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Canary in a Coal Mine

by Canary Film category: Film

“Millions around the world suffer because of ignorance. Let's show the true face of M.E. #seeME #mecfs #MEally http://thndr.it/1cfNDUR

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Canary Film
Soutiens
775 de 500
155% de l'objectif visé
Portée Sociale
1,443,444
personnes atteintes
Durée Restante
Terminé

Terminé

This campaign ended on November 19, 2013 at 1PM

Canary in a Coal Mine

Canary in a Coal Mine is a new documentary film that takes an unblinking look at life with Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome") a prevalent, devastating, and profoundly misunderstood disease.

You can raise the profile of this illness and support our film by helping to create a single moment – 1pm ET on November 19th, 2013 – when we will be more visible as a collective force, to our friends, families and networks, than perhaps we have ever been before. 

Our story is one that needs to be told. It's a cautionary tale about the human consequences of a medical system that is ill-equipped to treat an illness that challenges its every assumption, the danger of ignorance, and the power of a name. It’s the story of a community of millions that to most of the world is invisible. 

SYNOPSIS:

Jennifer, a Harvard PhD student, was signing a check at a restaurant when she found she could not write her own name. Months before her wedding, she became progressively more ill, losing the ability even to sit in a wheelchair. Doctors insisted that her condition was psychosomatic rather than real.

As she dug deeper, she found she had become a part of a hidden world of millions suffering from an illness for which there is evidence dating back to at least the 1930s. The disease, myalgic encephalomyelitis, was re-branded in the 1980s by the CDC as 'Chronic Fatigue Syndrome,' a name which became both a punchline and a Rorschach: a wastebasket of undiagnosed conditions hiding a very real disease. Scientists at the country's top institutions have found evidence of profound metabolic, neurological, and immunological dysfunction in patients with M.E.. However, since the disease is not taught in medical schools, doctors don't know how to recognize it, effectively denying healthcare to a million Americans.

In Canary in a Coal Mine, Jennifer documents her own story and the stories of Jessica, a young British woman who runs a children's charity from the room that has been her whole world for the last eight years, Howard, an 80s rock publicist-polymath, Mary, an activist, Liisa, a Canadian ex-buddhist monk, and Leeray and Casie, a mother and daughter bedridden in Georgia. Through extreme diets, experimental medication, political activism, or by moving closer, or farther, from God, each struggles to find their own way to fight, accept, and sometimes, even thrive in spite of 'an illness that has no end.'


ABOUT THE FILMMAKERS

Jennifer Brea, Director/Producer

Jennifer is a doctoral student in the Department of Government at Harvard University on indefinite medical leave. Prior to that, she was a print journalist in Beijing and East Africa. She is a TED Fellow, and earned her AB in Politics from Princeton University.

Kiran Chitanvis, Creative Producer/ DP

Kiran is an independent filmmaker. She has worked on numerous short and feature films that have played at festivals around the world. A member of the inaugural class at the Tisch Asia Singapore campus, she holds an MFA in Film and Television Production from NYU Tisch School of the Arts. She earned an AB in Politics from Princeton University.

Rien de nouveau

Organisateur

Canary Film
@canaryfilm

Canary in a Coal Mine is a new documentary film that takes an unblinking look at life with Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome") a prevalent, devastating, and profoundly misunderstood disease.

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