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WORLD PH DAY - DIA MUNDIAL HP

by PHA - PHA EUROPE - SOCIEDAD LATINA DE HIPERTENSION PULMONAR category: Cause

“I Support World Pulmonary Hypertension Day - Yo Apoyo, Eu Apoio Dia Mundial Hipertens-ión/ão Pulmonar! WorldPHDay http://thndr.me/ppFXxF

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PHA - PHA EUROPE - SOCIEDAD LATINA DE HIPERTENSION PULMONAR
Soutiens
811 de 500
162% de l'objectif visé
Portée Sociale
4,378,727
personnes atteintes
Durée Restante
Terminé

Terminé

This campaign ended on May 05, 2018 at 11PM

WORLD PH DAY - DIA MUNDIAL HP

World Pulmonary Hypertension Day (WPHD) is a campaign established by the global pulmonary hypertension (PH) community to raise awareness of PH, a life-threatening disorder of the lungs and heart.

WPHD is marked annually on May 5 but campaign activities take place throughout the month of May. Thanks to your support, we reached 2.5 million people in 2017. We hope to reach a larger number this year and make pulmonary hypertension a known disease so that we can facilitate earlier diagnose and save lives.

Severe breathlessness even when carrying out simple everyday tasks like walking short distances or climbing stairs, is a key symptom of PH and has a very severe impact on the quality of life of PH patients. PH affects capacity to work, to carry out household chores, to have a normal family and social life, can affect interpersonal relationships and lead to depression. If PH is left untreated, patients have a survival of only a few years.

By uniting together we can continue to strive for early and accurate diagnosis, optimal treatment, better quality of life and additional research into all the types of PH.

Help us to raise awareness of PH and inspire the PH community by joining our Thunderclap. Let’s make a “Thunderous” noise on May 5 to raise awareness of this little-known rare disease!

Dia Mundial HP

Con motivo del Día Mundial de la Hipertensión Pulmonar (WPHD, por sus siglas en inglés) hemos creado una campaña por la comunidad mundial de hipertensión pulmonar (HP) para aumentar la conciencia sobre la HP, un trastorno de los pulmones y el corazón que representa una seria amenaza para la vida.

El WPHD se celebra anualmente el 5 de mayo, pero las actividades de la campaña tienen lugar a lo largo de todo el mes. Gracias a sus apoyos, alcanzamos a lanzar un mensaje a 2 millones y medio de personas en 2017. Tenemos la esperanza de alcanzar un número mayor este año y hacer de la hipertensión pulmonar una enfermedad conocida para facilitar diagnósticos tempranos y salvar vidas.

La falta de aire severa incluso cuando se realizan tareas cotidianas simples como caminar distancias cortas o subir escaleras, es un síntoma clave de la HP y tiene un impacto muy alto en la calidad de vida de los pacientes con esta enfermedad. La HP afecta la capacidad para trabajar, llevar a cabo tareas domésticas, tener una vida familiar y social normal, puede afectar las relaciones interpersonales y conducir a la depresión. Si la HP se deja sin tratar o no es tratada a tiempo, los pacientes tienen una supervivencia de sólo unos pocos años.

Al unirnos podemos seguir esforzándonos por un diagnóstico precoz y preciso, un tratamiento óptimo, una mejor calidad de vida y una investigación adicional en todos los tipos de HP.

Ayúdenos a crear conciencia sobre la HP e inspirar a la comunidad de pacientes que viven con esta enfermedad, uniéndose a nuestro Thunderclap. ¡Hagamos un ruido “atronador” el 5 de mayo para aumentar la conciencia de esta enfermedad rara poco conocida!

Dia Mundial HP

Por ocasião do Mundial de Hipertensão Pulmonar Day (WPHD, por sua sigla em Inglês), criamos uma campanha para a comunidade mundial de hipertensão pulmonar (HP) de sensibilização para a HP, uma doença fatal que acomete os pulmões e o coração.

O WPHD é realizado anualmente no dia 5 de maio, mas as atividades de campanha ocorrem durante todo o mês.

A falta de ar é o principal sintoma da Hipertensão Pulmonar. Muitos pacientes, mesmo para as tarefas diárias simples, como subir escadas, pentear os cabelos, podem sentir um enorme desconforto. E tal incapacidade gera uma grande perda na qualidade de vida deles. A HP altera a capacidade de trabalhar, realizar tarefas domésticas, ter uma família normal e vida social, e pode afetar as relações interpessoais e levar à depressão. Se a HP não for tratada a tempo e de forma correta, o paciente pode falecer em poucos anos.

Ao unir-se a nós, podemos lutar por um diagnóstico precoce e preciso, o passo fundamental para busca do tratamento ideal, que irá promover uma melhor qualidade de vida e sobrevida ao paciente.

Ajude-nos a aumentar a conscientização sobre a HP e apoie os pacientes que vivem com esta doença, apoiando a nossa campanha Thunderclap. Vamos fazer um barulho "ensurdecedor" em 5 de Maio de sensibilização para esta doença rara pouco conhecida!

For more info in English www.phassociation.org & www.phaeurope.organd for Spanish www.sociedadlatinahp.org

ORGANIZER

PHA - PHA EUROPE - SOCIEDAD LATINA DE HIPERTENSION PULMONAR  
@WorldPHDay

The PHA, PHA Europe and the Sociedad Latina de Hipertension Pulmonar are patient associations respectively from the USA, Europe and Latin America, working to improve the conditions of pulmonary hypertension patients worlwide. PH is a severe lung and heart condition.




  • Four million thanks

    May 6, 2018
    Dear all,

    It has been an impressive growth. From 2.5 million in 2017 to 4.4 million this year. There are no words to thank you enough.

    We want to make Pulmonary Hypertension a well known disease. This knowledge and the awareness you help us raise will save thousands of lives in the future. Our struggle and our efforts focus on the long term because it is a battle that will only be won with endurance and perseverance.

    We hope to count on you next year to continue with this effort and spread the word even further.

    Thank you from the bottom of our hearts,

    PHA, PHA Europe, Sociedad Latina de Hipertensión Pulmonar
  • WPHD support message progress

    April 13, 2018
    Dear friends

    This year we aim at increasing our reach over 3 million. We count on you to make it possible.

    Thank you for your help and your great support.

    Warmest regards,

    PHA - PHA Europe - Sociedad Latina de Hipertensión Pulmonar
Organisateur

PHA - PHA EUROPE - SOCIEDAD LATINA DE HIPERTENSION PULMONAR
@WorldPHDay

We are one (PHA) patient's organization of pulmonary hypertension and two (PHA Europe and Sociedad Latina de Hipertensión Pulmonar) umbrella organizations supporting national patients' organizations of pulmonary hypertension.

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