Make the message your own! Customize this tweet.
Total social reach added
Spread the word. Invite friends to join the Thunder.
by Toby Vokal category: Health
This campaign ended on May 12 at 12PM
Approximately 17-20 million people worldwide have ME/CFS.
“I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses I would rather have H.I.V.” Dr. Nancy Klimas 2009
Despite the million sufferers in the US, and approximately 25% rates of disability and high economic costs chronic fatigue syndrome (ME/CFS) ranks near the bottom in funding amongst the approximately 200 diseases and conditions the NIH funds.
Center For Disease Control (CDC) studies indicate that chronic fatigue syndrome (ME/CFS) patients as a group have disability rates similar to people with multiple sclerosis, lupus, rheumatoid arthritis, heart disease and other serious diseases.
The Centers For Disease Control estimates from 1-4 million people in the U.S. have chronic fatigue syndrome (ME/CFS).
The Centers for Disease Control estimates approximately 80% of chronic fatigue syndrome (ME/CFS) cases in the U.S. go undiagnosed.
The average annual costs per family, including financial losses due to unemployment, are about $25,000 a year. Studies suggest that chronic fatigue syndrome (ME/CFS) costs the US economy about 20 billion dollars a year.
Besides exhaustion or fatigue chronic fatigue syndrome (ME/CFS) patients must display a distinct set of symptoms in order to have CFS.
Research studies indicate chronic fatigue syndrome (ME/CFS) affects many different systems across the body including the immune, endocrine and autonomic nervous systems.
While some patients do recover, there is no cure for CFS, and many remain ill.
My name is Toby Vokal and I've had ME for 18 years.
Katie Jane Lloyd
Hilde Lin Larsen
Cassie Abshire Sistrunk