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by May Twelfth category: Health
It is the dream of our patient community to erase the stigma and finally be taken seriously by friends, family, researchers, government and people in our local communities. May 12th Awareness Day is a chance for the millions of patients worldwide suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) to be seen and heard! These illnesses are real; the people are real; and they need help NOW!
These are chronic and severely disabling illnesses. They are as disabling as MS. People are frequently bedridden and become isolated from friends and family – invisible in their own communities.
Dr Nancy Klimas, an expert in both ME/CFS and AIDS, was quoted as saying "A CFS patient feels the same or worse than congestive heart failure. The same or worse than late stage AIDS. If I had to choose between the two illnesses I would rather have H.I.V. "
These illnesses do not discriminate. All races, men and women, adults and children can be afflicted. It is particularly devastating when a child is forced to cope with such a disabling illness.
We are on a mission to bring awareness around the world for this patient community and to set the stage for fundraising for research and more physician education and ultimately a cure.
With awareness, will come action! Our community is desperately in need of treatment facilities and funding is required to support research and our scientists. A successful May 12th will bring many rewards for years to come. These activities will not only benefit us today, but they will be an investment in our future.
To quote Helen Keller – “Alone we can do so little; together we can do so much.”
Promotion of May 12th International Awareness Day for ME, FM and neuroimmune illnesses. This is our day to raise awareness around the world.
This year marks the 22nd anniversary. We are real people, with a real physical illness and we need to raise awareness. Awareness will ultimately translate to more funding, research and a solution.
See www.facebook.com/may12th.awareness for more May 12th activity.