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Aust patients send SOS

by Australian Pompe category: Cause

“It’s International Pompe Day, Aust is one of the last to access treatment, Peter Dutton please act to save lives http://thndr.it/1lahgww

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Australian Pompe
Supporters
179 of 100
179% of goal supported
Social Reach
42,778
People
Time Left
Complete
Ends Apr 15, 9:00 AM AEST

Complete

This campaign ended on April 15 at 9AM

Aust patients send SOS

Australians with rare and life threatening Pompe disease need your help.

 Pompe disease is a rare genetic disease that breaks down muscles, putting people in wheelchairs, on ventilation, and eventually kills.

 Despite it being available in over 50 other countries, Australia is falling behind and only funds treatment for those diagnosed in infancy.  Those left with no access to the enzyme replacement therapy that saves lives include a 12 year old Melbourne boy.

 Australians urgently need access to treatment

Organizer

Australian Pompe
@australianpompe

Australian Pompe’s Association is a patient run organisation supporting each other and our families impacted by Pompe disease. We are fighting for our lives and the lives of other Australians with Pompe disease.

Thunderous Supporters
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Kate Theochari
2,283 Connections

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Juan Magdaraog
1,403 Connections

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Ir Lee Yee Seng
1,199 Connections

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Dinos Toumazos
1,086 Connections

Recent Supporters
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Ellen Gibson
about 3 years ago

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Kristina Partridge
about 3 years ago

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Jacqui Kirkman
about 3 years ago

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suchislife318
about 3 years ago

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suchislife318
about 3 years ago

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Ikuo Kuribayashi
about 3 years ago

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Christine Isabel
about 3 years ago

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Brad Gibson
about 3 years ago

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