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CDH Action Day

by CHERUBS- The Association of Congenital Diaphragmatic Hernia Research Awareness and Support category: Cause

“Help take action against #CDH! April 19th is Congenital Diaphragmatic Hernia Action Day. #CDHawareness http://thndr.it/1vvgYt3

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CHERUBS- The Association of Congenital Diaphragmatic Hernia Research Awareness and Support
Supporters
392 of 250
156% of goal supported
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226,387
People
Time Left
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Complete

This campaign ended on April 19, 2015 at 12PM

CDH Action Day

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues.


CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage. Help raise CDH awareness April 19th!

Why April 19th? On April 19, 2010, after 2 years of court proceedings, a CDH charity that trademarked the phrase "Congenital Diaphragmatic Hernia Awareness" was forced to give up the trademark and CDH Awareness was once again free for all families, hospitals, and charities to raise! This victory for our babies and families is now celebrated every year as a day to raise Congenital Diaphragmatic Hernia Awareness.

Organizer

CHERUBS- The Association of Congenital Diaphragmatic Hernia Research Awareness and Support
@cherubs

CHERUBS- The Association of Congenital Diaphragmatic Hernia Research Awareness and Support. CHERUBS mission is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community.

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