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World PH Day 2015

by Pulmonary Hypertension Association (PHA) Europe category: Cause

“Share your CTEPH #BreathofSuccess stories and inspire hope in the pulmonary hypertension community! #WorldPHDay http://thndr.it/1Jf1Wdk

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Pulmonary Hypertension Association (PHA) Europe
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154 of 100
154% of goal supported
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139,694
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Complete

This campaign ended on May 05, 2015 at 12PM

World PH Day 2015

World Pulmonary Hypertension Day (WPHD) is a global campaign established by the global pulmonary hypertension (PH) community to raise awareness of PH, a life-threatening disorder of the lungs and heart.

WPHD is marked annually on May 5 but campaign activities take place throughout the year.

Severe breathlessness even when carrying out simple everyday tasks like walking short distances or climbing stairs, is a key symptom of PH and has a very severe impact on the quality of life of PH patients. PH affects capacity to work, to carry out household chores, to have a normal family and social life, can affect interpersonal relationships and lead to depression. If PH is left untreated, patients have a survival of only a few years.

This year, we are raising awareness of the five different types of PH, each of which has a complex story behind it.  However, chronic thromboembolic pulmonary hypertension (CTEPH) is the only type of PH which is potentially curable without the need to resort to lung transplantation.

The potential cure for CTEPH is a surgery called pulmonary endarterectomy (PEA) and a successful surgery is the ultimate success story for a person with this disease. However all achievements, no matter how small, should be celebrated!

The #BreathofSuccess campaign forms part of the wider World PH Day and "Get Breathless for PH" initiative to support the cause through high-energy sporting activities. It aims to inspire the PH community with positive stories of everyday successes achieved by people with CTEPH.

By uniting together and sharing success stories for WPHD, we can continue to strive for early and accurate diagnosis, optimal treatment and additional research into all the types of PH.

Help us to raise awareness of PH and inspire the PH community by joining our Thunderclap. Let’s make a “Thunderous” noise on May 5 to raise awareness of this little-known rare disease!

For more information visit the PHA Europe website: www.phaeurope.org




Organizer

Pulmonary Hypertension Association (PHA) Europe
@EuropePHA

PHA Europe is the umbrella organization for pulmonary hypertension in Europe. It works together with its 33 member associations in 29 European countries to enhance awareness of pulmonary hypertension, promote optimal standards of care for people living with this life threatening condition, ensure the availability of all approved treatments, and encourage research for new medicines and therapies.

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