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#MillionsMissing Demand Change

by #MEAction Network category: Cause

“There are #MillionsMissing due to the world’s most common orphan disease, ME. We protest today. Lend your support! http://thndr.me/RV0ZsY

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#MEAction Network
Supporters
1,115 of 500
223% of goal supported
Social Reach
578,893
People
Time Left
Complete
Ends Sep 27, 11:00 AM EDT

Complete

This campaign ended on September 27 at 11AM

#MillionsMissing Demand Change

The #MillionsMissing aren’t strangers to you. They are your friends and family, neighbors and coworkers. They are 20 million strong, worldwide.
 
#MillionsMissing is a global movement to raise awareness and achieve rights for citizens with Myalgic Encephalomyelitis. Millions are missing from their careers, schools, families and lives because of this disabling disease; but there is little to no medical training for clinicians or research funding for scientists eager to work on treatments.

Compared to the similar illness multiple sclerosis, the difference is staggering: MS is half as common but research in the US is funded at a rate of 20 times higher per patient.  In Canada, the situation is yet more dire, with the government spending an average of $0.52 per patient per year.

M.E. is not a rare illness, and it does not affect a special population: anyone can contract M.E., regardless of age, gender, or background. 
 
On Tuesday September 27th, the #MillionsMissing will have a global day of action to demand funding and medical training commensurate with the disease severity and economic burden. Protesters will demonstrate in 24 cities globally. Displays of empty shoes will represent the millions of ME patients too sick to participate — both in the protests and in their lives.

Raise your voice with us to demand fair funding, equitable research, and a seat at the table for the #MillionsMissing. Make this invisible illness visible on September 27 by sharing our message using the above links.

Organizer

#MEAction Network
@MEActNet

#MEAction is an international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis (M.E., also known as chronic fatigue syndrome).

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Peter Tatchell
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Ashley Kerns
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