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A World WITH Down's Syndrome

by Future of Down's category: Cause

“I want to live in a world with Down’s syndrome. Help parents get unbiased support #worldWITHdowns http://thndr.me/9sE6ze

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Future of Down's
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5,144 of 100
5144% of goal supported
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2,775,309
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Time Left
Complete
Ends Oct 21, 9:00 PM BST

Complete

This campaign ended on October 21 at 9PM

A World WITH Down's Syndrome

Future of Down’s is a group of parents and self-advocates campaigning for a more balanced and modern view of Down’s syndrome. 

We believe that prenatal screening for Down’s syndrome, while recognising expectant parents’ need for improved testing, should be approached in a way that is respectful of the Down’s syndrome community. We ask that:-

  • All parents who receive a prenatal diagnosis get information that reflects up to date life chances of individuals with Down’s syndrome, and that if their result indicates a high chance of the condition, they never hear the words ‘I’m sorry’
  • Parents are routinely able to access appropriate counselling when deciding about subsequent prenatal testing
  • Parents who opt to continue a pregnancy with a high chance or diagnosis of Down’s syndrome, do not have their decision questioned by healthcare providers, and receive appropriate support as determined by maternity guidelines developed to provide optimal care for mother and baby

Before rolling it out on the NHS, we urge the government to await the findings of the Nuffield Bioethics Committee review, exploring the ethics around Non Invasive Prenatal Testing; and call on the NHS to provide unbiased information about the condition.

Organizer

Future of Down's
@future_of_down

Future of Down’s is an online community actively promoting, supporting and protecting the future for people with Down’s syndrome.

A source of friendships and support, plus invaluable information, these parents and self-advocates are now joining together to campaign for those with Down’s syndrome and create a positive acceptance of the condition.

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