thunderclap logo
loading
×
×
×
×
×

I stand with sickle cell

by Dawna Dilworth category: Health

“Its time to stand up and fight against sickle cell disease. Join me. Let's get the word out #istandwithsicklecell http://thndr.me/FMw3Kq

profile image
Dawna Dilworth
Supporters
118 of 100
118% of goal supported
Social Reach
61,265
People
Time Left
Complete

Complete

This campaign ended on April 22, 2017 at 12PM

I stand with sickle cell

Red blood cells (RBC) carry oxygen and in sickle cell there is a genetic defect that makes the RBC collapse and look like a sickle. Normal RBC are flexible and can carry alot of oxygen.  Sickle cells are hard and rigid and get stuck in small spaces.  They don't carry as much oxygen as does a normal cell. If this cell gets stuck in a small space it can block blood vessesl, deprive tissue of oxygen and cause pain and strokes.

Over 2 million people in the US. carry this gene; about 100,000 have sickle cell disease (SCD). 1 in 12 African Americans are carriers with lesser in Hispanics (1 in 100), and even less in those of Middle Eastern, or Indian descent. The disease affects 1 in 400 Blacks and 1 in 19,000 Hispanics.

The funding disparities for sickle cell disease research compared to other pediatric diseases are huge. Cystic fibrosis, a disease that affects primarily Caucasians, occurs in only a third of the numbers affected by SCD, but receives 3.5 times more funding. Private funding from foundations was about 400 times higher for cystic fibrosis! Unsurprisingly, Johns Hopkins researchers note that no drugs were approved between 2010 and July 2013 for the treatment of SCD compared with five for cystic fibrosis.

It's time to stop the disparities in both research and treatment of this painful and devastating disease.  Today #istandwithsicklecell

Organizer

Dawna Dilworth

In addition to being a physician, I am a member of Top Ladies of Distinction, Inc., a professional humanitarian organization One of our goals is to spread the word and raise awareness about sickle cell disease. www.tlodinc.org

Recent Supporters
profile pic

Kieran Casey
6 months ago

profile pic

Melbe Ford
6 months ago

profile pic

Donna Edwards
6 months ago

profile pic

Donna Edwards
6 months ago

profile pic

Joan Lynch
6 months ago

profile pic

Paula Ridley
6 months ago

profile pic

Sandra Wallace
6 months ago

profile pic

LaValette Boney
6 months ago

×