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by The Neuro Foundation category: Health
Neurofibromatosis (NF) is a genetic condition that affects 2.5 million people worldwide. It causes tumours to grow in the nerve tissue throughout the body and as of yet, there is no cure. Our aim at The Neuro Foundation is to help improve the lives of people living with NF in the UK.
On 17th May 2018, we celebrate World Neurofibromatosis Awareness Day and want to raise awareness of a genetic condition of which many people are unaware, despite it being more common than Huntington’s Disease, Cystic Fibrosis and Muscular Dystrophy combined.
Please consider donating to support those with Neurofibromatosis!
Thunderclap is a crowdspeaking platform that helps people be heard by saying something together. It allows a single message to be mass-shared at the same time. By connecting your social media accounts to Thunderclap, you can help spread the word about Neurofibromatosis. Connect today and on the 17th May, Thunderclap will automatically send out a World Neurofibromatosis Awareness Day message on your chosen social media platforms so you don’t need to remember to!
The Neuro Foundation
The Neuro Foundation aims to improve the lives of those living with Neurofibromatosis by providing crucial non-medical and medical support.