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Training "Generation Cure"

by Ryan Prior category: Health

“#MECFS the great under-reported medical story our time. 1m Americans severely ill, yet 94% of med schools dont teach http://thndr.it/1hUudvb

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Ryan Prior
Supporters
271 of 250
108% of goal supported
Social Reach
84,888
People
Time Left
Complete
Ends Jan 23, 12:00 PM EST

Complete

This campaign ended on January 23 at 12PM

Training "Generation Cure"

A recent survey by DePaul University asked medical schools if they were meeting clinical, curricular, and research standards for teaching ME/CFS. Only four of the 71 responding schools (5.6%) met criteria for all three domains.

This is a major problem because 1 million Americans and 17 million people are severely ill with this disease, which experts conclude is as disabling as late-stage AIDS, cancer, and congestive heart failure. Federal funding from the NIH is stagnant at just $3 million-$6 million per year. 

Patients can't wait for the government to act. They need quality care NOW. Wait times to see ME/CFS experts can be several years long. That's why the Blue Ribbon Fellowship seeks to enable medical students to spend their summers studying at top neuro-immune institutes and to publish their research. It's time to inject new vigor into this field and train the next generation of ME/CFS clinicians. 

We will be speaking at the National Press Club in Washington, D.C. on Friday, January 24th, with Andreas Kogelnik, MD, PhD, a fierce supporter of this initiative and a world expert on neuro-immune diseases.

For more info, visit: http://theblueribbonfoundation.org/2014/01/11/patients-plan-to-educate-doctors-on-chronic-fatigue-syndrome/

  • We're Almost Ready for Liftoff!

    January 22, 2014
    Thank you SO much for your support of our Thunderclap in honor of the upcoming ME/CFS panel at the National Press Club in Washington, D.C. We couldn't be more excited to collaborate with journalist Llewellyn King and physician-researcher Andy Kogelnik on this important event.

    Our Thunderclap is poised for success, but we need one last boost. We've topped 232 of the 250 supporters needed to make this message heard.

    One of the important reasons for both this Thunderclap, the press event, and for the Blue Ribbon Fellowship is that we need to expand this conversation beyond the ME/CFS community. We need to use the tools of social media, journalism, and medical education to do more than just preach to the choir. We have to "expand the congregation."

    We want to challenge you to be a part of that. Reach out to one person in your social circle and tell them about ME. Encourage one person to support our Thunderclap.

    We can't wait for 80,000 people to hear our message!
Organizer

Ryan Prior
@r_prior

Ryan Prior is a journalist and president of the Blue Ribbon Foundation. He was afflicted with ME/CFS in 2006 and saw 16 doctors prior to getting diagnosis. He is currently producing a documentary on the disease entitled "The Blue Ribbon: ME/CFS and the Future of Medicine."

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